Fibromyalgia : A Pain In The Everywhere (part 1)

On November 13, 2017, in BLOG, Fibromyalgia, by brendajohima

Fibromyalgia is, a pain-in-the-everywhere … and if you have it, you truly know what I mean.

Mine began post-trauma, after a car accident that I was in, on June 28, 2000. (a date that I never forget)

While driving, I was rear-ended and pushed into the vehicle ahead of me; so I was hit from back and front. I sustained back and neck injuries, and also a concussion. (post-concussion syndrome)

Little did I know at the time of the accident, that I also got fibromyalgia. I never recovered fully, and yet here I am almost 18 years later, trying to find a way to give back, to share what I have learned.

Prior to that accident, I was a healthy athlete, a runner, and active in everything from sports to daily workouts, to music and performing as a singer.

Recently I decided to write this multi-part post on fibromyalgia since I have been living with it now for 17+ years. Maybe something I write may help someone else along the way.

(* Disclaimer : I am not a medical professional, consultant or expert. This is my own personal journal of thoughts and writings and I’m not providing any recommendations or medical advice. Please make sure you do what works for YOU only and only what is right and safe for you personally. I am just sharing my personal experience at this moment in  time.  Listen to your gut, smarts and heart, and, seek out the professional advice your physician, a medical expert, a registered nurse, a counsellor, psychologist, your local hospital or otherwise. Thanks!)

Alright, now that the legal-babble is done, I am free to speak :0

As far as I know, at this time, there is no known one cause and no one cure at this time for fibromyalgia. There are many theories, which you can research and look up online. I have yet to find a definitive cure. I have my opinions as to which theory makes the most sense as far as the cause, which is neurological, as my fibromyalgia came on after neck and back injuries and a concussion, post car accident; post-traumatic. But who knows? Nobody. Fibromyalgia is a medical mystery.

So what CAN you and I do in the meantime? My first tip? 1. Keep Moving. Keep Your Body Moving.

When you have fibromyalgia, all movement can be painful. Does that mean we get to stop moving? No. In my opinion, that’s the worst thing to do; to stop moving. YES, we must rest and need to rest. There seems to be no way around that. However, EVEN when the pain of fibromyalgia hurts, I keep on moving, and at  minimum, I walk. Walking is free, and I can make it as short or long a trip as I can tolerate each day. (which varies day to day) Plus, even if in pain, my (and yours) heart and lungs need the exercise, and my mind needs the mental stimulation of being outdoors, and the social and spiritual aspects of doing exercise, well, you get the gist; crucial.

(and yes, I have been right there with you if you are at the beginning of your fibromyalgia journey, when during some times in my life, I was not able to move much at all; I slept and rested almost all the time, every day, 7 days per week. There were times that I thought I would never improve. I am here to say that change is possible. I am not yet cured, and there may be no cure (yet) but your body can definitely heal, and over time you can do more and more, even while living with this syndrome 24/7)

Please keep coming back to this blog, as I will post once per week for a few weeks on this topic of fibromyalgia and what I currently use and things that I have done in past, to try to come to peace with it, and also to gain some comfort from the relentless, ever-changing 24/7 pain … in the everywhere.

My second tip? 2. Don’t Give Up. Never. Give. Up.

Keep on trying anything and everything. As many of you who have it know, fibromyalgia pain changes from day to day, and often, from moment to moment. The toughest part of the syndrome to deal with is that you wake up and never know what you are going to get each day. It is totally unpredictable, mentally, emotionally and physically. That lack of predictability is  hard on the sufferer and very confusing to those who love and work with them.

That’s it for now, and I leave you with a little humour, hopefully a smile, with a photo of my standard poodle Teddy. He (also known as Dr. T.) makes me smile every single day, and he is one of the ways that I cope, and take my mind off of the pain.

Loads of Love,
Brenda

 

 

 

When Stress Hits

On November 13, 2017, in BLOG, by brendajohima

No matter the time of day or night, when stress hits, there’s always something you can do to help your mind and body feel better.

3AM insomnia lead me to get up and first do some stretching and then to start juicing and to turn on positive affirmations in the background on YouTube for an hour.

A commitment to do whatever it takes, no matter what.

Then, some writing, and back to sleep, feeling more in balance.

Always Love,

Brenda

 

When Life Feels Like This For Too Long

On November 13, 2017, in BLOG, by brendajohima

We all go through rough patches in life. Sometimes those rough patches can last for a long time. We do the best we can to change, to get out of it and onto a new track, always chasing the light.

And yet sometimes, there are people, places and things in our lives, careers or situations, where it just never gets better no matter what you do, no matter how hard you try … nothing shifts … or worse, things head in reverse and go downhill.

Knowing when to let go and to say goodbye isn’t easy, but it brings peace.

So if your path starts to look like an uphill struggle for too long, is it time to find a new trail?

Sometimes it’s better to bushwhack into the unknown, to travel less travelled roads, to surrender and to take the chance to let go, than to stay the course on the rough and bumpy uphill struggle where you can keep on tripping and possibly even risk falling, getting nowhere but backwards.

Always Love,
Brenda

 

phoDOGraphy.CA

On November 13, 2017, in BLOG, by brendajohima

Dog photography and Puppy photos. Did you know that I have another website?

phoDOGraphy, I started in 2010, offering dog photos and puppy photography, then took a break for many years and started up again in 2017. You will find my portfolio here : phoDOGraphy.CA

Thanks! Look at these cuties!
Brenda

 

Write Even If Nobody Is Listening

On November 11, 2017, in BLOG, by brendajohima

Write, for you, for your own healing, wellness and self-expression. Write, as if nobody else is reading or listening.

In Silence.

Write.

Make art as if nobody else will ever see it.

In Silence.

Make Art.

Make music as if no one will ever hear it.

In Silence.

Make Music.

Make photographs as if nobody will ever see them.

In Silence.

Make Photos.

Herein lies true creativity from the soul without influence from others, without distraction and free from expectation ..: and there it is … that you find … your … SELF.

Always Love,

Brenda

( all of my nature photos below have been taken while enjoying nature on beautiful Vancouver Island )

 

Melodica and Breath

On November 11, 2017, in BLOG, by brendajohima

Melodica / melodion is a wonderful instrument for healing, for breath work, brain and wellness. I’m currently experimenting with melodion as a total beginner, using it as a meditative tool, to focus on the breath and to take my mind off of other things. So far it’s working well.

Always Love,

Brenda

 

Music for Healing

On November 11, 2017, in BLOG, by brendajohima

My last ukelele had a little glitch, so this is try number 2.

So far I’m in love with the yummy mellow sound.

Always Love,

Brenda

 

Nature’s Complexity

On November 11, 2017, in BLOG, by brendajohima

 

If I Had One Regret

On November 8, 2017, in BLOG, by brendajohima

If I had one regret, it would be having listened to other people instead of myself, to my own intuition, and to my own gut.

Other people don’t know you, and they may be wrong, and they may not be able to see what you can see in the future, and they may not feel to the depths that you do, and they may not live in the world of the unknown and the unknowable as you do, and they may not be the risk takers that you may be.

Other people may be competitive and consciously or unconsciously be competing with you, undermining your success and goals.

Have you ever gone to the “wrong” people for advice? Often? Regularly? Usually good and loving family members, friends, colleagues, all mean well and they all want to help us. But they aren’t us. They do not know you, to the depths of your being. Only you do.

By going to the people for advice that you know cannot help you, it is like regularly going to drink from an empty well. You will get dehydrated and not feel so great.

Listen to yourself. Always be your own first wise counsel.

Your heart, mind, soul, gut, spirit and body can always guide you and are far wiser and more powerful than anything else out there. The Universe will in turn, listen and support you.

As you learn to develop and grow the skill of listening to yourself, even if you make mistakes in the beginning and even if it seems a little crazy in your own mind, the idea of listening to your self. Trust, YOU … the benefits WILL be worth it in the long run.

Regret No More. Life is Wild and Wonderful.

Always Love,
Brenda

 

Never Shall I Spend Another Moment Ungrateful

On November 8, 2017, in BLOG, by brendajohima

Have you ever felt stuck? Really stuck? Paralysed with fear, unable to take any action at all? The kind of anxiety where, no matter what anybody else says or does, you don’t feel that you can change? The type of fear where no self-help book or video or famous person saying famous quotes can help you change? I mean stuck. Where no amount of massage, meditation, yoga, breathing, diet or exercise … nothing, shifts it?

Well that was me. Stuck, for days, weeks, months, years?  … in several areas of my life. I don’t recommend it to anybody. Generalized Anxiety Disorder, P.T.S.D., Fibromyalgia and more, shall no longer have control over me.

Good-Bye Stuck.! Good riddance.

Stuck … Until just moments ago. One email correspondence, or a lifetime of moments building up, prior to that (we will never know) … just changed me.

It is time for Brenda to Get. Back. Out. There. and to Leave. The. Past. Behind.

An entire world (and ocean) awaits with new people, opportunities.

It’s time to wake up, to get up, to get back out there, and to be thankful for it all, along the way.

Gratitude amongst other skills and daily routines shall get me to where I want to go. I shall never spend another moment ungrateful. There is so much in life to be grateful for and I am surrounded by it each and every day. It’s time to take noticing internally, to the external, and to make it a way of life.

Always Love,
Brenda

 

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